Comments on: Gastroparesis: Always Feeling Like You Just Ate Thanksgiving Dinner

By: Lisa

Lisa — Fri, 20 Jan 2012 00:23:00 +0000

It’s possible to have reflux and gastroparesis. The reflux is usually caused by the gastroparesis becuase the slow emptying isn’t going downwards fast enough so it has to go somewhere which is upwards. There is nothing wrong with Nolan having liquids. The body doesn’t know the difference between liquids and solids. Nutrition is nutrition and as long as the liquid has all the nutrients he needs. Try having him on pediasure. My daughter takes ensure plus to help boost her calories as she is underweight from her gastroparesis. (i really hate that word!).

By: dlefler

dlefler — Thu, 19 Jan 2012 18:42:00 +0000

Our little guy was failure-to-thrive for well over a year and went undiagnosed because of a pediatrician who insisted that we were simply too lenient with our son and allowing him to drink as much milk as he wanted. He would wander around with a single cookie ALL day long and not finish it! We had a GES done when he was just under two, and it showed some delayed emptying (27% after an hour, so mild) – and then a pH probe showed severe reflux. We treated the reflux, which worked initially, but now our son is 4 1/2 and nothing is working – the reflux is just getting worse. We saw a pediatric surgeon for a fundoplication, but after reviewing the little guy’s records, he’s concerned about motility again. So we’re back to the “is it just reflux or is it reflux/gastroparesis combined?” question. Nolan’s eating fairly decently now, but still prefers liquid foods to things like bread.

By: Megan Kondilas

Megan Kondilas — Wed, 04 Jan 2012 04:01:00 +0000

I have Gastroparesis and have had it for almost 4 years now. I’m 19 years old and have idiopathic gastroparesis, which we think was caused from a stomach virus. I’ve had the Gastric Stimulator for a year and a half and have tried almost all of the medicines. Oh, and the youngest I have heard of a child getting a gastric stimulator is 3 years old. Not alot of places do children though. I would love to talk to you and be there for you if you have any questions. My email is: megan.kondilas@gmail.com Also, have you heard of G-PACT? Its the organization for people with Gastroparesis. Here is there website: http://www.g-pact.org or facebook.com/GPACT There are so many support groups that G-PACT has on facebook and its a great way to connect with others that have the same disease. I hope your son is doing alright today! Sending good tummy vibes and prayers! I hope to hear from you soon! <3

By: Anonymous

Anonymous — Fri, 30 Dec 2011 19:49:00 +0000

I can’t thank you enough for your blog. My son 3 has been batteling gastroparesis since birth. We just got diagnosed in July. Finally we have answers after we tried every formula and bottle in the book. We’ve been on eryped ever since. He has not gained much and they are giving us till april before we start appetite stimulant. If that fails they are thinking motility specialist who would probly put in J tube first. A little scary but your blog gives me hope and a feeling that I’m not alone in this battle. Thank you. .

By: Lisapetrinec

Lisapetrinec — Wed, 28 Dec 2011 00:54:00 +0000

Let the doctors scope her if they haven’t already. My daughter didn;t get scoped 3 yrs ago. She was told she had gastropareseis. It went away and she was great for 2 yrs and it came back in July. She has been scoped and they found 2 small ulcers and gastrits. She takes meds but they don’t seem to help much. Her gastroparesis is mild according to the doctors but she is full all the time and day to day life for her is tough, She can’t make school full time yet. We’re hoping this nightmare goes away soon

By: Lisapetrinec

Lisapetrinec — Wed, 28 Dec 2011 00:49:00 +0000

Hi, your not alone. Make sure your son has tests done as his symptoms can be many things. Constaption can cause fullness, nausea, and loss of appetite. The meds for gastroparesis aren’t very good so don’t feel bad that he isn’t taking anything. Sounds like he has reflux as well, my guess he will grow out of it

By: Mpdgmama

Mpdgmama — Tue, 27 Dec 2011 05:56:00 +0000

I just took my son to the er today because he is getting sick at least once a day and they said he has gastroparesis. i was googling it and found your page. and i read your page and it gave me alot of questions to ask the doctor when i get my son in to see her. my son is 2 and hardly eats and they say that is normal but since he had a problem going to the bathroom last month he has started to get sick at least once a day. when he was a baby i had to change his formula because after every feeding he would get sick and they blamed it on the formula but he still got sick but not as much. the er doctor told me today that its something he will grow out of by 6 or 7 years old and he doesnt want to put him one the med for it because of his age and it having so many side effects. Diabetes runs in both sides of his family both mine and his fathers so now im rather scared.

By: Rebecca Cassel

Rebecca Cassel — Fri, 19 Aug 2011 19:58:00 +0000

HI, my daughter has had gastroparesis since birth, and it’s a constant struggle. She’s almost a year old now, and appears to me to be getting thinner and thinner, and I feel so helpless. She also has GERD, and it’s a struggle to figure out what foods she’ll eat. I dread every feeding and every doctor’s appointment. The GI doctor only wants to scope her, which I’m refusing at this time. I don’t know whether or not to try e-mycin, as she’s so sensitive to antibiotics (which I found out after her 5th ear infection this year). I’m so scared for her and am terrified of feeding tubes.

By: Lisapetrinec

Lisapetrinec — Sun, 14 Aug 2011 20:53:00 +0000

Hi my daughter had gastoparesis 3 yrs ago when she was 9. At first it came on as a virus but never went away. She ended up taking domperidome (available in Canada). Her she was very nauseas and she missed alot of school, especially in the mornings. She finally got better, it took monthssssssssssssss. She was great for 2 yrs and this gastroparesis came back this july. We are all really upset. I took her to a naturopath last week who has experience with gastroparesis. He has her on a 2 week strict diet. Gluten, wheat free, no red meat, no dairy or raw fruits and vegetables. It’s been tough. He also gave us homeopathic medicines as well. I dont see any improvement yet but we’re committed to give it 2 weeks. My daughter has a history of taking alot of antibiotics as a baby and I feel this could be a fungal condition. If you have time go to www,knowthecause.com to learn about the relationship with fungus(what we eat) and many health conditions.

Lisa Toronto

By: Anonymous

Anonymous — Sun, 03 Apr 2011 02:05:00 +0000

I’m always willing to answer questions! Just send me an email and I’ll try to get back to you as soon as possible.